Wednesday, November 26, 2008

Breathe. Keep Breathing.

Is what I had to remind myself when the neurosurgeon first stepped into the room. This appointment has been in the making for around a month and a half but to my husband and I it seemed like forever.

Trey was making great progress during his therapy sessions at Mary Free Bed. Great progress in all areas but in the crawling position. The therapists were noticing that he wasn't lifting his head up and they weren't sure whether it was due to weakness or if something was possibly wrong. A referral was made to see a specialist who reviewed the x-ray's only to give us news that there is a possibility of a couple medical conditions. Google was not my friend that night.

After seeing that specialist, it was suggested that we should have Trey undergo an MRI and a CT scan to take a closer look at the area in question. Last week we had an early appointment at Spectrum for his scans, thankfully we were the first scheduled so they moved along quickly. How traumatic it was I'm sure for Trey seeing all those doctors surround him. For me, traumatic doesn't even come close to what I felt seeing them put him under sedation.

We had the big appointment with the neurosurgeon early this week. The appointment that we have so anxiously awaited to learn what was going on with our little buddy. After reading up on the possibilities of what they were looking for I was scared stiff. If what they were looking for was found, we were facing surgery. Spinal cord/brain surgery. Just breathe...

He was a very nice guy. He sat down on his little swivel doctors chair, looked us in the eye and said, "It's not what they were looking for." I about fell to the floor. Praise the Lord! Then the "however" came out of his mouth. At that moment we learned that Trey has a condition which results in excess fluid to collect around his brain - Trey is Hydrocephalic. Thankfully Trey has a mild form of it and it is expected that his body will be able to absorb the extra fluid therefore not needing a shunt. They are expecting that by the age of 2 he will be developmentally caught up with the help of more physical therapy. That is our hope and our prayer.

We have another MRI scheduled in mid-December to look into a different area of concern with Trey but we are again praying for good results.

Thanksgiving could not have come at a better time. Being it's the day of giving thanks, I thought I would share what I am thankful for. Today I am thankful for life and for health. Life, because it is so precious. Health, because it can be gone so quickly. I am thankful I have 3 beautiful children that we love more than they could ever imagine. What are you thankful for today?






In light of all that has been going on and that continues to happen, I am taking a much needed break. Images of Essence will be closed December 6 - January 31. In January my husband and I are taking a much needed and well deserved vacation. December is for me to re-energize, to get re-inspired, to rest, and most importantly to be with my family. Please feel free to contact me during my vacation by phone or by email to set up future appointments. No worries my faithful readers/blog stalkers, I still have a couple sessions that got in by the skin of their teeth so keep checking back. I will show their faces so we can throw stones at them later. JUST KIDDING (seriously, do not throw stones at them... seriously) I love them.


Happy Thanksgiving - we all have a lot to be thankful for!

4 comments:

Patti said...

What a cutie-pie he is! I'm so happy for you that the news was good! Enjoy your time off with your family!

Your Uppercase Living Demonstrator said...

Kerry, for some reason I was unaware of this, and I apologize... As I read "Trey" in there, I think "wow...what if that was us writing this about our "Trey"...oh dear, my heart breaks for them." I do thank God that you are able to write that you were given an answer, and that you know God and all his power. I know as your heart/eyes look at your precious bundle of joy everyday you see him as perfect, and that is just what he is, and will always be, no matter where this journey takes you. We will be believing for healing and total restoration BEFORE he turns 2! So glad to hear of your break! You, your babies, and hubby will NEVER regret that!

The Robinsons said...

Praise the Lord that he doesn't need surgery. We will pray that you will for complete healing for him. Happy Thanksgiving!

Anonymous said...

Ohhhhh....I know that helpless feeling of watching your poor baby being sedated and undergoing testing. My heart is aching for you, that you had to experience that too.

But I'm also rejoicing that you finally have answers! I used to babysit a little girl and the doctors suspected she had the same thing. They never tested her and hopefully those issues will resolve themselves. I'm so happy that you now know what is going on...and that Trey will be ok. Praise God from whom ALL blessing flow!

Shame on you for Google seaching for answers. :) I did the same thing once upon a time and the results paralyzed me with fear. Sometimes the internet is not a good thing...

Enjoy your much deserved break!

Lori